I have a new article up on Suite 101 please view it here.
This is my first post in the Frugal Tuesday Tip carnival and my tip relates to students and I guess home schoolers too. I rarely buy textbooks anymore. Most can either be found in libraries or the information can be found on the internet or you may be able to share with a friend. If I really have to buy a book I try buy it secondhand.
This post is part of Frugal Tuesday Tip.
Have you seen this ad?
I just watched it for the first time and on the one hand I think it is a great idea and I hope that it raises a lot of money but on the other hand I am angry and hurt. The ad makes it seem like having CP is the worst thing that can happen to a kid and that having CP means that you will automatically be a burden on your family. This makes me feel angry because I hope I am proof that it is possible to have CP and still be a functioning member of a family and society.
I am also in a way hurt by the ad because I have never asked for (or received any) help in purchasing equipment. I have saved until i have had enough money to buy it myself where government funding has not been available. I am hurt by the idea that I somehow shouldn’t do this? I know that’s not what the ad is saying but its the way it made me feel; like by providing for myself I am somehow a victim.
I have finally been seen by doctors at St Vincents for a second opinion about the Vasculitis.
The dermatologist was nice and spent a long time talking with mum and I about everything. The upshot of the appointment is this: They aren’t sure if Vasculitis is the correct diagnosis for me and even if it is we need to work out which type of Vasculitis I have to make sure I’m on the right treatment.
The plan: They did a lot of blood work today to check for many different conditions band I also need to have a chest xray and urine sample tested. They are also beginning to wean me off the Prednisolone starting tomorrow and I will stop taking the Immuran tonight. This of course will cause me to crash and have everything flare really badly. This is what the doctors want/need so they can perform another biopsy to get the correct diagnosis. This biopsy may be able to be done locally or may mean another 7 hour drive which will add to the ton of pain I’ll be in.
So I would expect the next few weeks will be extremely tough for me and I am very scared. I have no idea how I will cope with feeling so yucky and school and exams and everything else I need to do. I am in a ton of pain right now (even with the patch etc) and the thought of it getting worse has me slightly panicked. But it seems like this is the only way to move forward with getting better so I will do what I have to. More on this tomorrow when I am hopefully thinking clearer. I also see Rheumatology next week to get their take on things and maybe some of the results of the tests done.
So I begin the medical merry go round again…
I need some advice on how to reduce debt and budget properly if anyone has any suggestions?
Dear caringbridge and carepage and blog friends,
Many weeks ago I was given the homework task of writing to a person I admire now I’m not usually one to leave my homework to the last minute but I really struggled with this one. I struggled to find somebody who I’d admired. I think this is because my own values have been changing so much lately and the qualities that I admire in other people are also ever changing. When once I would have chosen a sportsmen such as Mark Skaife or a singer such as Adam brand for the way they haven’t let fame go to their heads and their dedication to their chosen careers, I have recently began to look at life in an entirely different light.
I now admire too many people to just name one. I admire the kids and adults who go through chemo with a smile on their face, I admire those who learn to walk and talk again through laughter and not tears.
I have been called an inspiration many times since I started my caringbridge site and my carepage. I don’t see myself as doing anything other than living my life as best as I know how and trying to be the best person I can be. If this helps others in some way then it is a bonus.
I have learnt a lot about myself and how I want to live my life from the people who use the sites and their families. I have learnt that it is more important to live each day as if it’s your last than to sweat on the small stuff, however the little things are what makes me happiest.
I have also come to realise that no matter how bad the stuff going on in my life seems at the time there is always somebody going through more than I am. Despite, this it is okay to get on with my life as best as I can and I will always have the support of those who love and care about me.
There is much more that I have learnt and too many people that have helped me to realise all this. In short if you are reading this then I admire you and thank you for your inspiration.